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In this issue...

"A Helping Hand" by Ros Hill

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Upcoming Events

February 21-23, 2008

March 10-15, 2008

April 22-23, 2008

June 3-6, 2008

June 17-20, 2008

June 19-22

Ikigai Newsletter
"That which makes life worth living..." 

January 2008

Greetings!

 

This past year was a busy and exciting one for the Seaton Foundation. We launched the first phase of the Center for Lifelong Planning (CLLP.org), and we published the first edition of our bimonthly newsletter, Ikigai. As 2008 begins, we focus our attention on developing and collecting content for CLLP.org's LifePlan portal, which will provide information and online resources on a variety of topics related to cognitive disabilities. As the site has been under construction over the past several months, we have appreciated your patience and invite you to visit CLLP.org in March to check out our updated content.

 

In our first newsletter of 2008, we feature Ros Hill's funny and inspirational story, "A Helping Hand." At this time of year, as we all reflect upon what is important in our own lives, Ros's story offers perspective on what it means to create a life worth living, even in the face of seemingly insurmountable challenges.

 

During the upcoming year, we hope you continue to discover and nurture ikigai in your life, as well as in the lives of the people you serve.

 

Best regards,
David Seaton
President, Seaton Foundation

A Helping Hand
by Ros Hill  

 

Spiders are not my most favorite creatures. In fact, the daddy long-legs--whose weight almost matches that of a postage stamp--is one such creature that I keep my distance from. I can clearly remember a time when I was younger, taking a shower with a daddy long-legs walking up the wall next to me. Oh, the agony! You would think the only intention that bug had was to jump out onto my face and bite me like a vampire. So, I whacked it off the wall with a big towel, sending it down the drain with ten minutes of continuous hot, steamy water. Afterwards, it dawned on me that maybe, just maybe, that was a slight overreaction.

 

True challenges are those that are seemingly insurmountable. They are big issues, whether mental or physical. When you can face those challenges without fear, that is the measure of strength. When I was in 5th grade, I faced a challenge that came in the form of a classmate--a girl of all things. She challenged me to an arm wrestling match, but there was so much more to it than that. This girl made me realize how small most of our problems are, and how we don't even have a clue about how to face the bigger ones.  Inspiration comes in many forms. This one came in a lunchroom.

 

School cafeterias packed with 5th graders are noisy, busy, bustling places, where food is a frequent and effective projectile. On one of those typically chaotic days, after having successfully avoided a Twinkie missile, out of the corner of my eye I spied Sherry Nevius making her way toward my table.  "Would you like to arm wrestle?" she brazenly asked. Since when do zebras come out of the brush and ask lions if they wouldn't mind sharing some of their warthog kill?

 

I looked at Sherry in disbelief. "You must be crazy." 

 

Her gaze didn't waver. "Don't think so," she replied confidently.

 

Word quickly spread throughout the lunchroom that the match was on. The sound of wooden chairs could be heard scraping over the floor as kids abandoned their lunches and began crowding around Sherry and me.

 

"Come on, Sherry, are you sure you want to go through with this?"

 

"Are you?"

 

To a 5th grade boy, there is nothing worse than a girl with nerves of steel.  This was a challenge that was beyond any other I had faced in my eleven years. On the outside, I showed confidence and accepted the invitation. On the inside, my stomach was turning ugly knots. Still, I gritted my teeth--doing whatever I could to muster bravery. My friends gathered around me for support as I prepared to slay Sherry with my iron fist. The lunchroom was taking on the look of a "G" rated prison riot, with a gang of harmless kids standing and chanting on tables and chairs. In my eyes, this was the match of the semester. The boys cheered my name, the girls, hers.

 

*    *    *

 

Two schools shared this packed lunchroom:  Metcalf (grades K-8), and Fairchild, which was a school solely devoted to the mentally and physically handicapped.  Since kindergarten I had grown up with the Fairchild kids whose challenges came in the forms of mental retardation, cystic fibrosis, cerebral palsy, and multiple sclerosis. There were also deaf and blind kids. Wheelchairs, crutches, walkers, walking sticks, protective helmets, and hearing aids were commonplace. Some of the Fairchild students were integrated into our classes at Metcalf. Sherry Nevius was one.

 

Since birth, she had dealt with cerebral palsy. She got around with the aid of some metal crutches that were braced just above her elbows. The upside to Sherry's disability: she had arms as tough as climbing rope and a grip that was fiercely alien.

 

Sherry raised her arm to ninety degrees on the lunchroom table, and rolled her fingers in the air, as if to say, "Game on."

 

In my mind, this was more than a physical test of strength-my pride was at stake. I planted my elbow on the table, locked hands with hers, took a deep breath and went for it.

 

We were deadlocked for what seemed forever. Kids were going nuts. Teachers and cafeteria workers were placing bets. Her grip was unbelievable. Slowly, ever so slowly, I felt my arm inch over hers. My wrist got to the point of curling even more, until I had her. Down to the table I laid Sherry Nevius's hand.

 

The challenge was behind me. I had slayed the dragon.

 

When you're in 5th grade and you win a difficult arm wrestling match (and it doesn't matter whom you wrestle), you will walk through school for the rest of the week reliving that moment, that victory.

 

Today, I still relive that moment, but with a very different perspective. You see, 35 years later, I have reconnected with Sherry. We're in touch on a regular basis by phone and through e-mails. In the years that have past, she has not only acquired two college degrees, but has led a very self-sufficient and fulfilling life. She radiates the kind of positive energy that everyone should own. With all of the challenges that she has faced, she makes everyday living seem a breeze.

 

Yes, back in 5th grade I really never won the match, for it was Sherry who was chalking up victories right and left against all odds. It was Sherry who high-fived you at the end of the competition.  It was Sherry who, at birth weighed half that of a five-pound bag of sugar, and not only spent her first six months in an incubator, but later narrowly escaped being institutionalized. 

 

And it was Sherry who, no matter how far she had to walk a crooked line in her cumbersome crutches, no matter how great the obstacle, would always--and I mean always--find a way to come out a winner. To this day, Sherry is one of the strongest people I have ever known. And if she can persevere, maybe there's hope for the rest of us.

 

Ros Hill is a writer and artist living in San Marcos, Texas. "A Helping Hand" is from his collection of short stories, due to be published in Fall 2008. For more information on Ros, visit  www.hillustrations.com.

 

Useful Resources

About Us

The Center for LifeLong Planning (CLLP) was established to provide comprehensive resources for professionals and caregivers dedicated to the support and planning for persons with cognitive disabilities. We are committed to promoting better communication and understanding of the multiple issues related to planning for individuals with cognitive disabilities, and their families, over the course of their lifetime.

 

For more information, e-mail us at info@cllp.org

 

 

The Center for Lifelong Planning is a program of the Seaton Foundation, a 501 (c) (3) organization, which was established in 1986 to provide information and educational opportunities for families of and professionals working with individuals with cognitive disabilities.