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In this issue...
Well-being by Sandy Ransom
The Eden Alternative
 
Upcoming Events
 
 
August 9-10, 2007 -
 
 
October 6-7, 2007 -
 
October 6-7, 2007 -
 
October 6-7, 2007 -
 
December 7-8, 2007 -
Ikigai Newsletter
"That which makes life worth living..." 
July 2007
Greetings!

CLLP logo 

Ikigai  (pronounced "ee-key-guy") is a Japanese concept, which translates as "that which makes life worth living." 

The Ikigai newsletter explores holistic topics that are integral components of health and well-being, with a special focus on how these issues affect individuals with cognitive disabilities, their families and caregivers. Each edition will highlight a subject related to ikigai, such as Faith, Hope, Purpose, Relationships, Community, Support and Well-being.

 

We welcome your comments and suggestions. Please feel free to forward our newsletter on to colleagues and friends.

 
Best regards,
David Seaton
President, Seaton Foundation
Well-being
by Sandy Ransom 
 

There is a growing movement within the field of long-term health care that has come to be known as the "Culture Change" movement.  The term refers to the culture of the organization and entails a variety of factors, one of which is the belief that each individual has the right to experience CLLP logothe highest level of well-being possible, an idea that extends to both staff and clients.  The impetus is focused on the individual client and that individual's right to direct his or her own care to the greatest extent achievable.  The movement began in the late twentieth century as visionary leaders recognized the need to transform the institutional model of nursing home care into a social model that addressed emotional and relational issues, in addition to physical and medical needs.  The work of those early pioneers has gained the attention of professionals in other special care arenas, such as brain injury and MH/MR care providers.

 

This person-directed care model challenges care providers and professionals to examine traditional beliefs and practices by defining new ways to measure quality of outcomes.  A task force convened in 2004 and sponsored by the Jefferson Area Board of Aging and the Eden Alternative® defined the ultimate outcome of the person-directed care as Well-Being. 

 

The concept of well-being reaches beyond the current quest for quality-of-care and quality-of-life outcomes.  Well-being encompasses clients, staff, families, leaders, organizations, and the community as a whole.  The greater task, then, is to articulate a clear definition of the term and its components.   The task force identified seven primary domains of well-being along with a comprehensive survey that explores each of the domains in depth.

 

An encapsulation of the seven domains is:

 

 

  • Identity - One's own identity, history, and feelings of self are essential to well-being.  The concept of being well known by significant others is fundamental.
  • Growth - Regardless of a person's physical or mental status, that individual remains capable of further development, learning, enrichment, unfolding, and evolving.
  • Security - Based on Maslow's hierarchy of needs, a sense of security (freedom from doubt, anxiety, or fear) is a basic need that must be met before we can grow toward self-actualization.  In the field of health care, this basic need includes privacy, dignity, and respect.
  • Autonomy - To be one's own person and to make one's own decisions is integral to well-being.  In order to honor this need, top-down management styles must be transformed so that hands-on caregivers and clients can attain the highest degree of autonomy possible.
  • Connectedness - All living beings require connections to others, to place, and to nature as well as to past, present and future, in order to thrive.
  • Meaning - The search for meaning in life is primary.  Everyone needs a sense of value and purpose, the opportunity for reflection, and the chance to pursue that which is personally sacred.
  • Joy - Joy is a condition of spirit that fills the soul.

 

In short, constant attention to the well-being of staff and clients offers a climate in which a true community forms, offering a life worth living marked by honesty and deep caring for each other.

 

Sandy Ransom, RN, MSHP, has been involved in long-term heath care since 1971 and is an expert on innovations in nursing home care, speaking on the topic to groups throughout the country. She is the Director of the Texas Long Term Care Institute at Texas State University at San Marcos and currently serves as the Vice President of the Eden Alternative Board of Directors.

The Eden Alternative®
The Eden Alternative® (Eden) is a not-for-profit organization based on the belief that humans are capable of continued personal growth regardless of their physical or mental abilities. Founded in 1991 by Dr. William Thomas, a Harvard-educated physician and board-certified geriatrician, Eden teaches that places where people live must be habitats for human beings, not sterile medical institutions. 
The Eden Alternative shows how companionship, the opportunity to give meaningful care to other living things, and the variety and spontaneity that mark an enlivened environment can succeed where pills and therapies often fail. 

Eden is also about moving daily decision-making closer to those individuals receiving care, staff empowerment, and transforming the top-down bureaucratic approach to management. Studies show that The Eden Alternative is a powerful tool for improving quality of life and quality of care, improved staff satisfaction and retention, and improved community satisfaction and involvement.

The bulk of Eden's work, to date, has involved de-institutionalizing the culture of nursing homes.  The success of Eden within the field of geriatric care has spurred interest in utilizing Eden Alternative Principles in other fields with individuals with cognitive disabilities (i.e. traumatic brain injury, intellectual disabilities, and home care).

 
For more information, call 512-847-6061 or visit www.edenalt.org.
 
 
Useful Resources
About Us

The Center for LifeLong Planning (CLLP) was established to provide comprehensive resources for professionals and caregivers dedicated to the support and planning for persons with cognitive disabilities. We are committed to promoting better communication and understanding of the multiple issues related to planning for individuals with cognitive disabilities, and their families, over the course of their lifetime.
 
For more information, e-mail us at info@cllp.org
 
 
The Center for Lifelong Planning is a program of the Seaton Foundation, a 501 (c) (3) organization, which was established in 1986 to provide information and educational opportunities for families of and professionals working with individuals with cognitive disabilities.