Jackie: Here is the May newsletter for CLLP. Please see separate e-mail for details. Thanks!
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In this issue...
Nurturing Self-esteem
Crisis of Brain Injury in America

 
Upcoming Events
 
May 28-30, 2008
 
June 3-6, 2008
 
June 7-10, 2008
 
June 17-20, 2008
 
June 19-22
 
August 14-15
Ikigai Newsletter
"That which makes life worth living..." 
May 2008
Dear Shelley,

 

Most of us, at some time or another, will struggle with issues of self-esteem - it is part of our human condition. But when it comes down to it, most of us believe in our value as human beings. A healthy self-esteem is directly related to our ability to grow and learn, to have relationships, to reach for our dreams - to live a good life. But for someone with a cognitive disability, self-esteem may not have such fertile ground to blossom, and it often fights for survival.

In this issue, we focus on the self-esteem issues faced by people with cognitive disabilities. The recently published report provided by the Brain Injury Consensus Conference recognizes that current brain injury programs do not adequately address all areas of treatment, including emotional and spiritual needs.  According to the report, "The effect of holistic treatment is synergistic, with small efforts in many areas combining to have a large impact on overall success."

When we only look at the disability, the person is lost and so is the potential for growth.  We must remember that the person with the disability is still a whole human being, and it is our responsibility to address those things that plague the human spirit and diminish self-esteem. When we do that, we open the door to many possibilities and opportunities.

 
Best regards,
David Seaton
President, Seaton Foundation

Nurturing Self-esteem

 
by Stan Seaton, M.D.  
 

Self-esteem is a tender flower, first nurtured during infancy by the gift of unqualified parental love.  As we move through life, most of us will sustain a few bruises to our self-esteem, which may challenge our faith in ourselves and what we can achieve.  But if we're lucky, we are well grounded in our personal relationships, our accomplishments, and our hopes and goals for the future, and it's this foundation that enables us to pick ourselves up, dust ourselves off and carry on with life.  Indeed, most of us believe in our own strength and resiliency - our ability to survive whatever life may have in store. We celebrate our unique ways of coping with life, creating happiness, managing our relationships, and planning for and achieving our life's dreams. We believe that life is good.

 

This is very often not the case for a person with a cognitive disability, whether the disability is the result of a developmental disability, brain injury, disease or aging.

 

Most individuals with a cognitive disability go through the agony of "Awareness."  Aware they walk, talk or socialize differently from others or from the person they want to be. These deficits are huge hits to the individual's self-esteem, and with increased awareness comes depression - or, to be more accurate, a grief reaction to the awareness of differences or limited possibilities. Coupled with this is the feeling of disconnectedness with family and friends, whose lives go on while the person with the disability feels stuck in a life that doesn't feel like it changes or grows.

 

Add to the situation the frustration that comes with having to deal with memory, decision-making, judgment problems and social issues that are often associated with a cognitive disability. Emotional effects may include experiencing a crisis of identity and a hopeless feeling that life is "passing me by."  This matrix does not support a positive self-esteem, and we often see the person flailing about, trying to establish some sense of uniqueness or importance - even in a negative manner.  Our role is to help this person regain their self-esteem by starting where they are and gradually making small, celebrated gains.

 

I do not believe that people who feel badly about themselves make progress; those who believe in themselves and their abilities make progress. Therefore, it is our responsibility to create an environment in which people can feel good about themselves, their accomplishments and contributions, no matter how small.  The environment must be tailored to fit each individual's needs and interests, but the ingredients are similar:

 

  1. Set up a system so people can earn what they get-no one feels good about being "cared for" over a long period of time. In fact, most of us become tyrants in such a situation, demanding more and more of the people around us while inwardly disliking ourselves. The good feeling of "earning" your way and taking pride in the effort and accomplishment is a basic ingredient to creating a healthy self-esteem.

 

  1. Develop relationships through sharing all aspects of living-blur the difference between clients and staff, care receiver and caregiver.  Eat together.  Work together.  Play together.  Bonds will be formed that allow for the safe sharing of feelings, and consequently, individuals will feel more accepted and will become comfortable in their ability to give as well as receive support. Such an environment allows them to see that there is dignity in being who they are.  We see that when the people reach out and make contact with others, their world gets bigger and self-esteem is raised. 

 

I believe the tender flower of self-esteem can be nurtured back to health as we help the person with a cognitive disability continue to grow, learn and experience a life that is rich with meaning, opportunities and companionship.  You and I have the privilege of participating in this process.  We want each person to succeed, to feel good about themselves, to make plans, form relationships, and look forward to each new day.

 

Psychiatrist Stanley Seaton, M.D. is the founder of Tangram Rehabilitation Network in San Marcos, Texas, and served as its Medical Director until 1998. He has served on numerous Boards and is a respected authority on issues related to cognitive disabilities. Contact him  at: sseaton2@austin.rr.com

 
Newly Released Report Addresses the Crisis of Brain Injury in America
 
"Concerned by the lack of treatment and service options for brain injury survivors, more than one hundred of the most respected military and civilian leaders in brain injury treatment convened recently to address the crisis of brain injury in America. The resulting report, Barriers and Recommendations: Addressing the Challenge of Americans with Brain Injury, demands major reforms within the military and service sectors. The public release of this report takes a hard-hitting look at available medical care, exposing the grim realities facing Americans with brain injury."
 
This notice appeared in Brain Injury Professional, Vol. 5, Issue 1. To read the full report, visit The Center for LifeLong Planning.

 
Useful Resources
About Us

The Center for LifeLong Planning (CLLP) was established to provide comprehensive resources for professionals and caregivers dedicated to the support and planning for persons with cognitive disabilities. We are committed to promoting better communication and understanding of the multiple issues related to planning for individuals with cognitive disabilities, and their families, over the course of their lifetime.
 
For more information, e-mail us at info@cllp.org
 
 
The Center for Lifelong Planning is a program of the Seaton Foundation, a 501 (c) (3) organization, which was established in 1986 to provide information and educational opportunities for families of and professionals working with individuals with cognitive disabilities.